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The mission of The Christopher Joseph Concha Foundation is to provide support and education to parents with premature children, to raise awareness to the general public about premature births, and to support research into premature related illnesses. |
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Children who are born prematurely as well as those babies who are considered small for their gestational age at birth are qualified to receive Social Security, SSI benefits.
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Keep a camera in the NICU so you or your baby’s nurse can capture those special unpredictable moments.
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Keep a journal of all that is going on with your baby, what the doctors say and more. We have developed a journal that will help you and make it easier for you to record these events. All proceeds from the journal go to the Christopher Joseph Concha Foundation.
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When things become overwhelming insist on a parent meeting with your baby’s doctors and primary nurse. If your baby has specialty doctors, do not be afraid to ask for a meeting with all the doctors together. This will guarantee everyone is on the same page.
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It can be helpful to have a family member or a trusted friend with you when speaking with doctors. This will provide additional support, as well as, a much needed extra set of ears. These meetings can be overwhelming and toss out much infomation.
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Develop a message board on the computer that your family and friends can go to, so you are not bombarded with phone calls and e-mails .
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Bring in a mirror so when you kangaroo you can see your baby while you are holding him/her.
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| Fast Facts - Research - Nutrition |
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